My Baby Needs your Prayers

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Axlis
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My Baby Needs your Prayers

Postby Axlis » Fri May 09, 2008 10:52 pm

We found out today that our son, Emerson Elijah, has a brain tumor about the size of a tennis ball. We won't know more until the biopsy after Monday, the wait is the worst part.

Please pray for us.

EDITED TO ADD UPDATE:


First off, I want to thank you all for the prayers and kind words, we really need them right now.
I want to let you know a little more about whats going on, since I was short with my first message.


Emerson is our first and only child, born at nine pounds. His head was kinda large at birth, and was monitored monthly, but he was otherwise very healthy. The real problems with Emerson can be traced back to December, when he started vomiting much more than we thought a baby should. It was around that time that he also developed a nystagmus in both eyes. We took him to two different doctors, and they both said his vomiting was acid reflux, and his nystagmus was weak eye muscles and that the jerking would pass with age.

Emerson began to develop a VERY ferocious appetite. It seems like he was always hungry. They told us just to cut him back, he would adjust. But he was never satisfied. Emerson is now eight months old and weighs thirty-seven pounds. It seems like Emerson never sleeps, he would sleep at the MOST for three hours at a time, and then was up every hour after that, screaming to eat. You could not satisfiy his hunger for long, and he threw up a lot. We talked to the doctors several times, and I feel like they just would not take us seriously, perhaps assuming we were just overly concerned first time parents. They had a reason for everything, and assured us it would all pass.

By his 6 month visit Emerson had developed amblyopia, which is what people commonly call a "lazy eye", and our pediatrician scheduled us see a pediatric ophthalmologist. We were already concerned about his nystagmus, and also worried he would inherit my high myopia (nearsightedness). It took nearly two months to get an eye appointment with this specialist. When we finally saw him, the eye doctor was immediately concerned with his upbeating nystagmus, and scheduled an MRI, which would be another 2 weeks. We also found out he is already -6.50 myopic in both eyes.

Fast forward to yesterday. Our worst nightmare became a reality when the doctor came in and told us that they found a mass on his brain. It is on his optic nerve, and his pressing against his pituitary gland as well. He most likely has no peripheral vision because of the tumor, and may be limiting his central vision as well. It is also more than likely the cause of his increased appetite, vomiting, and sleeping disturbances. The MRI looks very scary. The tumor is large, a little bit smaller than a tennis ball. It's position makes surgical removal an extreme last resort, because it is surrounded by healthly tissue.

Emerson is getting a biopsy done Monday, and the doctor told us their is a possibility of damage from that as well, considering they have to go through healthy brain tissue to get a sample. They will try to go through as little tissue as possible, but there is always the chance of some damage. We won't know anything more about the tumor until at the very earliest Tuesday, whether it is benign or malignant. We are hoping and praying it is benign, because a malignant one means a very, very poor prognosis.

Even if this is benign, it is still very serious considering his age and the sheer size of the tumor, and we are going to have a long road ahead of us with chemotherapy, and living with the constant worry that this will come back, or will not be treatable. I never thought I would ever have to see my baby have cancer, I have never felt this sad before in my life. It's really hard knowing that our baby isn't perfect. It just breaks my heart.

PLEASE KEEP PRAYING FOR US!!![

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dete
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Postby dete » Fri May 09, 2008 10:54 pm

prayers sent,

poor thing, at such an early age!

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amen74
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Postby amen74 » Fri May 09, 2008 10:59 pm

My thoughts are with you, your family, and most of all your baby Emerson.
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potterma
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Postby potterma » Fri May 09, 2008 11:16 pm

I can't even imagine what you are going through.... Prayers sent!
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Fred Sanford
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Postby Fred Sanford » Fri May 09, 2008 11:22 pm

Hey buddy, I've prayed for you, your wife, and your son. I will continue to do so daily and God will take care of it.

Peace be with you brother.
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raven
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Postby raven » Fri May 09, 2008 11:33 pm

Hey Axlis, PRAYERS INCOMING FOR ALL BROTHER!!!

God Bless :)


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Dr. Snubnose
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Postby Dr. Snubnose » Fri May 09, 2008 11:43 pm

I was shocked and saddened while reading your post...you and your family will be in my prayers daily...Doc
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buglerbilly
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Postby buglerbilly » Sat May 10, 2008 12:12 am

I am not a religious person BUT my thoughts are definitely with you, your Family and most specifically your little one...........

Regards,

BUG

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Agent Starling
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Postby Agent Starling » Sat May 10, 2008 12:35 am

Prayers sent, axlis. Take care.

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Th232
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Postby Th232 » Sat May 10, 2008 12:58 am

Prayers inbound for you and your family.
Will

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Brad S.
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Postby Brad S. » Sat May 10, 2008 1:02 am

My heart sank and has gone out to for your family after reading your post.

You will be in my prayers at all times.

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Monocrom
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Postby Monocrom » Sat May 10, 2008 1:05 am

Prayers will be sent out tonight.

Can't image how you all must be feeling. :(
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ozspyder
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Best wishes to all

Postby ozspyder » Sat May 10, 2008 1:08 am

Dear Axlis,

It saddens me to hear of this news :( Definitely not good to receive bad news when your kids are in the centre of it, and at such an early age. Let's hope that the early detection can lead to better news for the future of Emerson. My family and I will be praying for yourself, your wife and Emerson. God will look after the rest and will make things right.

Peace to you and your family. Hugs and kisses to Emerson.

Daniel
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Echo63
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Postby Echo63 » Sat May 10, 2008 1:15 am

im not a religious person, but my thoughts are with you during this diffcult time
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bigkahunasix
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Postby bigkahunasix » Sat May 10, 2008 2:10 am

Prayers and good thoughts.

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Postby MANIXWORLD » Sat May 10, 2008 2:29 am

My Most sincere thoughts go out to your son and family.have faith/believe and miracles do happen,bro.My prayer goes out to your son.

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Postby The Deacon » Sat May 10, 2008 2:35 am

Prayers have been, and will continue to be, send Axlis. My heart goes out to you and your family.
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Postby spydutch » Sat May 10, 2008 2:44 am

I'm really shocked to hear that Axlis.

There are times I wished I was a believing man so I could send prayers as well.

Be assured my thoughts are with the 3 of you Axlis regardless.

Hang in there my friend.
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lerman
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Postby lerman » Sat May 10, 2008 2:55 am

I'm shocked, you all should be vary strong, I'll sure be thinking about you and your family.

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Postby The Mastiff » Sat May 10, 2008 2:58 am

Thoughts and prayers are with you and your family. Take it a day at a time and make sure you don't forget to take care of yourself during this time of extra stress. Eat as well as possible, sleep as you can and try to maintain routines as much as possible

Your family will be needing your strength during this time. Good luck. Joe
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